Our First Visit to Shriners Hospital for Children

Camden had his first appointment at Shriners Hospital for Children today! We had such a wonderful time and we feel truly blessed with our whole experience! Everyone we met was so sweet and welcoming!! They made us feel right at home and we cannot wait to go back!


Camden and Mommy


Camden had an Xray done to see what his spine looks like and to see if he had any kind of bone around his hips at all. We were told that Camden has a great spine and some femur on his left hip, but he just doesn't have enough down there to get prosthetic legs. A man that works with the wheelchairs came in and said that when Camden is around 2 they will work on getting him a cool wheelchair that he can make move around with his arm or with his head, whatever will be best for him at the time. 

Camden wont be getting prosthetic arms any time soon, which I figured anyway, but I didn't know it would be 7-10 YEARS from now! They said his muscles and joints and all that good stuff need to mature before they add all that extra weight on there. They also said he will have a higher chance of taking well to them when he is older rather than younger. He will get aids for his arms from his Occupational Therapist as he gets older to help him eat, brush his teeth, draw, and all kinds of other stuff to help him be independent! 


The nurse practitioner we saw today wrote a prescription for Camden to have an ultrasound of his kidneys done. She said that in a lot of cases with limb deformities, there is something wrong with the kidneys. They just want to rule out that problem or catch it early if there is a problem. 

In between waiting for different people to come in our room to talk to us, the nurses kept bringing in more and more stuff that people had donated the day before. We couldn't believe it! Everything that they brought us was such nice things! I was surprised it fit in the car with our suit cases! After we got home I was looking at everything and I realized some of the stuff was very expensive and from what I could find, everything totaled up to be over $800! And all I can say is, WOW! I just want to thank Shriners Hospital for Children for truly caring for my son and giving him everything that he needed!! I don't know how you knew what he needed, but you did. It had to be God! We are just so thankful and I just can't say it enough! 



When we were about to leave one of the Shriners came up to us and made sure that Camden got a new toy! He picked out this lion. 



I also want to thank Shriners for believing in my son and for being so willing to give him all the chances that he deserves! Thank you for not saying that he couldn't do something. You guys are EXACTLY who we were looking for! Oh, and you guys did a good job thinking about that nursing pillow being a support to help Camden learn how to sit up! So far that is his favorite gift!! THANK YOU!! 






Comments

  1. So great! So glad you had such a good experience!

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  2. Sounds like an awesome day.

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  3. Awesome! So glad everything is working out! I remember being on BBC with you!

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  4. Hooray!!!!!! SOO HAPPY FOR HIM!!!

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  5. I was on the BBC Oct. 2013 board and was just thinking the other day about you and wondering how everything has been going. Camden is beautiful and perfect! I am so happy to see how well he is doing and what a lucky boy he is to have such a devoted and loving Mommy! I am so glad I googled stalked you and found your blog :)

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  6. So glad the visit was everything you hoped for and more. I've always heard good things about the Shriner's hospital and this just proves it. May God continue to bless your sweet little Camden.
    Karen Knight

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  7. Will be saying lots of prayers for you and your sweet baby, my son was also a patient of Shriners hospital in Tampa Fla. that was over 35 years ago, today he is fine, may God bless you!!

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  8. Luke 6:38 ESV / 6 helpful votes

    Give, and it will be given to you. Good measure, pressed down, shaken together, running over, will be put into your lap. For with the measure you use it will be measured back to you.”

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  9. I just wanted to say that as a person with a disability, I really appreciate that you are looking at all the potential your son has rather than his limitations. I think a lot of young parents might get caught up in what he can't do. My parents raised me to be independent and proud of who I was and today I have a college degree, I work, have a husband and am looking forward to having a family of my own!

    If you haven't already you should check out www.3elove.com. It is any awesome company. And no I do not work for them, but when my sister showed me your blog I said, "That baby needs some 3ELove!

    Thanks for sharing your story!

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  10. So freakin cute!

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